Inflammatory Bowel Disease Shared Value Initiative

Collaborating towards greater value in IBD

Some stakeholders believe that IBD would benefit from value-based care and payment models, especially at a time of change in treatment paradigm

Subspecialty conditions that experience high variability in cost and outcomes, are sometimes called “high-beta” conditions.[i] Inflammatory bowel disease (IBD) impacts an estimated 3.1 million (or 1.3%) of Americans. It is a high-beta condition that covers two autoimmune diseases—ulcerative colitis and Crohn’s disease. Some stakeholders believe that IBD would benefit from value-based care and payment models, especially at a time of change in treatment paradigm[ii] 

Tapestry collaborated with clinicians, payers, industry leaders, patient advocacy organizations, and others to explore how consensus-based value frameworks and enhanced learning platforms can accelerate value-based care and new alternative payment models in IBD.  

Project Background: 

In May 2021, Tapestry Networks convened the IBD Progress Summit , to take stock of key challenges in IBD care that impede consensus on new models. Stakeholders noted that shared principles for value in IBD could spur pilots of new approaches. With this in mind, a small group of payers and providers collaborated to develop mile-markers for value-based care delivery and payment innovation in IBD, which will eventually be published and shared with the broader community. The author group continues to engage with clinicians, pharmaceutical and data infrastructure companies), patients, and others to hear their perspectives on these topics, including an IBD Shared Value meeting in June 2022.   

[i] Lawrence R. Kosinski, “Letter to the Physician-Focused Payment Model Technical Advisory Committee,” Department of Health and Human Services, December 21, 2016, iv. 

[ii] James M. Dahlhamer et al., “Prevalence of Inflammatory Bowel Disease Among Adults Aged ≥18 Years — United States, 2015,”Morbidity and Mortality Weekly Report 65, no. 42 (October 2016), 1166–1169. 

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